
Ehlers Danlos Syndrome Care Plan for School Form


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People also ask
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How to support a child with Ehlers-Danlos syndrome?
Non-weightbearing exercises may be helpful, as may hydrotherapy. If joints are very weak, braces are recommended and care should be taken that they do not bruise or damage the skin. Occupational therapists can give help showing how to do the jobs that, in the normal course, may stress the joints.
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Is EDS a protected disability?
Yes, there is disability benefits available for people with Ehlers-Danlos Syndrome, but it is not always easy to qualify.
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What age does EDS get worse?
Vascular EDS: This is a life-threatening type of EDS that causes spontaneous blood vessel ruptures. Approximately 80% of people diagnosed with vascular EDS experience rupture of an internal organ by age 40.
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What activities should EDS patients avoid?
People with unstable joints should avoid high-impact activities (such as running and jumping), combat sports, high-contact sports, and sports that focus on flexibility. People with vascular EDS (vEDS) should only participate in exercise and sports at low intensity.
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What lifestyle changes are good for Ehlers-Danlos Syndrome?
Pacing, physiotherapy exercises, dietary changes and good sleep hygiene are all examples of things you can begin to take on yourself, with time, practice and support to contribute to managing your EDS and HSD.
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What can you not do with Ehlers-Danlos?
you may be advised to avoid some activities entirely, such as heavy lifting and contact sports. for some activities you may need to wear appropriate protection and be taught how to reduce the strain on your joints.
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How to help a child with EDS?
Physical and occupational therapy can help strengthen muscles around your child's joints and improve their quality of life. Orthopedic surgery may be recommended to stabilize loose or damaged joints. However, EDS increases the risk of surgical complications.
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What are the school accommodations for Ehlers-Danlos?
Accommodation recommendations for schools rest periods in the middle of the day to reduce fatigue. two sets of textbooks — one for home, one for school — to avoid carrying heavy loads. adjusted chair and table height. help with note-taking, and extended time for tests and assignments.
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