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Cplf Forms

Cplf Forms

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Instructions and help about calgary progressive lifestyles foundation

20 years ago when we started the program most people didn't know anything about rare ponary vascular disease and we were really lonely the patients were lonely there was no drug uh no organization and thanks to better awareness and a strong political support through the rare disease program in France we have been able to uh organize a network of centers we are a national reference Center and there is a network of centers throughout the the country and uh the patients have been very good also at organizing themselves they have built up a patient organization and now we we are doing much better with better awareness we do a lot of uh communication with GPS with uh political people so to increase priorities for our program so I would say that within 20 years uh it has been a major change and one of the very good uh and uh one of the very good uh results of this uh better awareness that now we have better drugs better management and uh better structure 20 years ago uh there was no

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