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 SPONSORSHIP FORM Derian House Childrens Hospice Derianhouse Co 2013-2025

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I think you feel so incredibly alone when you have a child that you know is going to die and to come somewhere like here you don't feel that same sense of loneliness anymore well Kia's nine now and he started coming to Darian house in June 2007 he's got a condition called metachromatic lucad distrophy which is quite a rare genetic disease after Kia was diagnosed obviously we were had a lot of involvement from um doctors and uh the community nursing team and we were introduced to Darian house by the community nurse who made the referral for us to to come and have a look around when we first sort of heard about about um derian house we we probably didn't really understand what a hospice was to be to be perfectly honest it's just a bit quite scary at first you obviously you associate hospice with really really sick children as opposed to it being rest bite care a really Lively fun loving place it is quite frightening because you you do have to confr

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