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Client Consent to Data Collection and ROI Santa Clara County Scc Hmis 2015

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Your registry is working with members of the ClinGen team to give you the option to share your genetic and health data to increase our understanding of genetics. This video will give you a brief overview of how to participate in the Data Sharing Program. First, you can learn more about the Data Sharing Program and choose to participate by taking the ClinGen data sharing informed consent survey in your registry account. This survey is listed under incomplete surveys. Second, after completing the consent survey, you will need to upload a copy of your genetic test report to your online registry account if you have not already done so. If you no longer have a copy of your report, the ClinGen team can help you request a copy from your healthcare provider or the genetic testing laboratory that performed your testing. If you need help obtaining a report, contact us at datashare@clinicalgenome.org. To upload your report, first, find testing results on your profile page and click "add

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CA Santa Clara County HMIS Client Consent to Data Collection and Release of Information 2021
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