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People also ask
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What does it mean when a disease is undiagnosed?
Undiagnosed diseases are defined as long-standing symptoms or elusive medical conditions that have not been diagnosed despite extensive clinical evaluation.
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What is National rare disease Program?
Government of India support in treatment i. Financial support upto Rs. 20 lakh under the Umbrella Scheme of Rashtriya Arogaya Nidhi shall be provided by the Central Government for treatment, of those rare diseases that require a one-time treatment (diseases listed under Group 1).
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What is the program for rare and undiagnosed diseases?
The NIH Undiagnosed Diseases Network (UDN) is a research study to improve the level of diagnosis of rare and undiagnosed conditions.
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What is the Undiagnosed Diseases Program Harvard?
The Undiagnosed Diseases Program pursues two goals: To provide answers to patients with mysterious conditions that have long eluded diagnosis. To advance medical knowledge about rare and common diseases.
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What is the rare disease registry program?
RaDaR is an online resource website that provides patient groups with guidance on how to develop registries for rare diseases. Good-quality registries help support research programs and stimulate treatment development.
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What is the undiagnosed diseases network?
The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health. Its purpose is to bring together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.
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Where to go when no one can diagnose you?
What should I do if I can't get a diagnosis? If you think you have an underlying disease that hasn't been diagnosed, you can ask your primary care provider for a referral to a specialist. And if you or your doctor suspect the disease could be genetic, you can always make an appointment at a medical genetics clinic.
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Can you get paid for having a rare disease?
Like any other disability, if you have a rare disease, you must show that your symptoms are so severe and not controlled by medication or other treatment to the extent that you are not able to work for at least a year or you're not expected to be able to work for at least a year.
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