DEPARTMENT
of HEALTH
and HUMAN
SERVICES
Fiscal Year
2007
Office for Civil Rights
Justification of
Estimates for
Appropriations Committees
DEPARTMENT OF HEALTH & HUMAN SERVICES OFFICE OF THE SECRETARY
Voice - (202) 619-0403
TDD - (202) 619-3257
Fax - (202) 619-3818
http://www.hhs.gov/ocr/
Director
Office for Civil Rights
200 Independence Ave., SW Rm 506F
Washington, DC 20201
Dear Reader:
I am pleased to present the Office for Civil Rights’ (OCR) performance-based Fiscal Year 2007
Congressional Justification. Consistent with the Secretary’s policy guidance, this budget request
continues support for the President’s and Secretary’s priority initiatives and reflects the goals and
objectives in the Department’s FY 2005-2010 Strategic Plan. This justification includes the FY 2007
Annual Performance Plan and FY 2005 Annual Performance Report as required by the Government
Performance and Results Act of 1993, along with a direct link of the budget discussion with program
performance.
OCR’s requested budget will ensure our ability to protect the public’s right to equal access and
opportunity to participate in and receive services in all the Department of Health and Human Services’
(HHS) programs without facing unlawful discrimination, and to protect the privacy of individuals with
respect to their personal health information. OCR’s performance objectives are in line with HHS’s
objectives for transforming the healthcare system and protecting life, family, and human dignity,
including: increasing access to high quality, effective health care; promoting the economic selfsufficiency and well-being of vulnerable families, children and individuals; and reducing disparities in
ethnic and racial health outcomes.
Lastly, our Program Assessment Rating Tool (PART) submission to the Office of Management and
Budget demonstrates our continued commitment to effectively and efficiently use our human capital to
achieve results in support of our nondiscrimination and privacy compliance mission. OCR has made
considerable progress in achieving results to support HHS-wide initiatives to improve the health and
well-being of the public. To keep up this momentum during FY 2006 and FY 2007, as in FY 2005,
individual performance plans at all levels of OCR’s leadership and staff will be focused on achieving
the goals and objectives set out in our performance plan and PART submission. In this way, everyone
in OCR will be working together to achieve our shared objectives in protecting civil rights and the
privacy of health information.
Winston Wilkinson, J.D.
Director
(This page intentionally left blank)
DEPARTMENT OF HEALTH AND HUMAN SERVICES
OFFICE FOR CIVIL RIGHTS
FY 2007 Budget Table of Contents
Page
Letter from OCR Director ......................................................................................................1
Organization Chart...................................................................................................................4
PERFORMANCE BUDGET OVERVIEW
Statement of Mission...............................................................................................................5
Discussion of Strategic Plan....................................................................................................5
Overview of Performance..................................................................................................... 10
Overview of Budget Request................................................................................................ 13
PART Summary Table ......................................................................................................... 14
BUDGET EXHIBITS
Appropriation Language....................................................................................................... 15
Amounts Available for Obligation ...................................................................................... 16
Summary of Changes............................................................................................................ 17
Budget Authority by Activity............................................................................................... 18
Budget Authority by Object.................................................................................................. 19
Salaries and Expenses........................................................................................................... 20
Authorizing Legislation........................................................................................................ 21
Appropriations History ......................................................................................................... 22
BUDGET NARRATIVE
Activity Header Table........................................................................................................... 23
Statement of Budget Request................................................................................................ 23
Program Description............................................................................................................. 23
Performance Analysis........................................................................................................... 25
Rationale for Budget Request............................................................................................... 25
PERFORMANCE DETAIL
Summary of Measures .......................................................................................................... 53
Detail of Performance Analysis............................................................................................ 53
Changes and Improvements over Previous Years ................................................................ 56
SUPPLEMENTAL MATERIAL
Detail of Full-Time Equivalent Employment (FTE) ............................................................ 59
Detail of Positions................................................................................................................. 60
Performance Budget Crosswalk ........................................................................................... 61
SPECIAL REQUIREMENTS .................................................................................................. 65
3
Department of Health and Human Services
Office for Civil Rights
Director
Winston A. Wilkinson
Principal Deputy
Robinsue Frohboese
Office of General Counsel,
Civil Rights Division
Edwin Woo
Deputy Director,
Civil Rights
Deputy Director,
Management
Operations
Deputy Director,
Privacy
(Vacant)
Joanne Chiedi
(Vacant)
10 Regional Offices
4
PERFORMANCE BUDGET OVERVIEW
Statement of Mission
The Department of Health and Human Services (HHS), through the Office for Civil Rights
(OCR), promotes and ensures that people have equal access to and opportunity to participate in
and receive services from all HHS programs without facing unlawful discrimination, and that the
privacy of their health information is protected while ensuring access to care. Through
prevention and elimination of unlawful discrimination and by protecting the privacy of
individually identifiable health information, OCR helps HHS carry out its overall mission of
improving the health and well-being of all people affected by its many programs.
By statute and regulation, OCR has the responsibility to be a key steward of the integrity of any
HHS program for which Federal financial assistance has been authorized, to ensure that such
funds do not support unlawful discrimination. HHS administers a nearly $640 billion budget
from which Federal financial assistance is provided to a vast array of health and human service
programs. HHS programs are administered by and through a wide array of government,
non-profit, and private entities. These programs and services affect the quality of life and
well-being of virtually everyone in the United States. In addition, under the Health Insurance
Portability and Accountability Act (HIPAA) Privacy Rule, OCR has responsibility for ensuring
the privacy practices of several million health care providers, plans, and clearinghouses,
including those that receive Federal financial assistance through HHS, adhere to federal privacy
requirements. Within this context, OCR’s mission and responsibilities are broad and inclusive
and, necessarily, its activities involve many dimensions and challenges given the number of
authorities for which OCR has enforcement responsibility.
Discussion of Strategic Plan
OCR's civil rights and health information privacy compliance objectives and cooperative
activities within the Department play a crucial role in support of all eight goals of the HHS
Strategic Plan, which has, as a core value, “to focus on health promotion and the prevention of
disease and social problems, including the prevention and correction of unlawful discrimination
in the provision of health and human services.” The protection of civil rights and individually
identifiable health information advances, and is integral to, the achievement of a wide spectrum
of the HHS strategic goals including, but not limited to: assisting families to achieve economic
self-sufficiency and independence; improving long-term care; improving the stability and
development of the Nation's children and youth; protecting and empowering specific populations
(e.g., community integration and self-sufficiency for persons with disabilities); and realizing the
possibilities of 21st century health care. OCR also supports a majority of the HHS Twenty
Department-wide Objectives including, but not limited to: increasing access to high quality,
effective health care; promoting the economic self-sufficiency and well-being of vulnerable
families, children and individuals; and reducing disparities in ethnic and racial health outcomes.
As stated in OCR’s Program Assessment Rating Tool (PART) submission to the Office of
Management and Budget (OMB), OCR has two strategic goals to accomplish its mission.
OCR’s first strategic goal is to ensure compliance and to increase awareness and understanding
5
of Federal laws requiring nondiscriminatory access to HHS programs and protection of the
privacy of individually identifiable health information. This goal has two long-term measures
and targets: (1) to increase the rate of resolution for civil rights and privacy cases and new
Medicare application reviews to 100 percent of cases received per year by end of FY 2012 and
(2) to increase the number of covered entities that make substantive policy changes as a result of
OCR intervention. This goal also has an annual target: to provide information and training to
31,250 individuals per year. OCR’s second goal addresses efficiency by increasing the number
of cases / reviews resolved per FTE assigned. The table entitled “Links to HHS Strategic Plan”
on page eight shows how the two goals and four program objectives and one management
objective in OCR’s Performance Plan support all eight “One HHS” program goals focused on
protecting and improving the health and well-being of the American public.
Moreover, OCR’s strategic goals, and its performance budget, also support all major priorities
outlined in the Secretary’s 500-Day Plan. In particular, by ensuring that people have equal
access to and the opportunity to participate in and receive services from all HHS programs
without facing unlawful discrimination, and that the privacy of their health information is
protected while ensuring access to care, OCR supports the Secretary’s goals of: transforming the
health care system; modernizing Medicare and Medicaid; advancing medical research; securing
the homeland; protecting life, family and human dignity; and improving the human condition
around the world. The table titled “Links to Secretary Leavitt’s 500-Day Plan” on page nine
shows how the two goals and four program objectives and one management objective in OCR’s
Results Act Plan contribute to the above-stated goals in the Secretary’s 500-Day Plan.
In FY 2007, within the broad and inclusive objectives of the Government Performance and
Results Act (GPRA), OCR will continue to address “One HHS” program goals and high priority
areas – nondiscrimination in health services programs, adoption, Temporary Assistance for
Needy Families (TANF), nondiscriminatory quality health care, enhancing provision of
appropriate services in the most integrated setting for individuals with disabilities, and ensuring
understanding of and compliance with the HIPAA Privacy Rule. These issues have been
consistently at the forefront of heightened Congressional, Departmental, and public interest
during the past several years. In addition, Presidential and Secretarial priorities, continuing
changes in health care delivery systems, recent research findings, media reporting, information
from community-based organizations, and ongoing OCR compliance activities confirm that it is
important that OCR continue, within a broadly-based compliance program, to address these key
areas where substantial information indicates a high incidence of possible discrimination or the
need for technical assistance on the Privacy Rule.
Further, OCR’s activities concentrate on ensuring integrity in the expenditure of Federal funds
by making certain that such funds support programs that ensure access by intended recipients of
services free from discrimination on the basis of race, national origin, disability, age, and gender;
and maintain public trust and confidence that the health care system will maintain the privacy of
individually identifiable health information while ensuring access to care. In doing so, OCR’s
activities enhance the quality of services funded by the Department and the benefit of those
services, by working with covered entities to identify barriers and implement practices that can
avoid potentially discriminatory impediments to quality services and privacy breaches. The
Department’s goal of providing quality health and human services cannot be met when
6
individuals in need of services do not receive them as a result of practices that violate their
fundamental rights of nondiscrimination or privacy.
OCR's activities support initiatives focusing on expanding opportunities and freedom for all
Americans, ensuring the privacy of individually identifiable health information, and improving
the health of the public through the HHS Strategic Plan and Secretary Leavitt’s 500-Day Plan.
In relation to the latter initiative, OCR’s non-discrimination and Privacy Rule activities aim to
maintain and increase access to health care, improve the quality of life, and eliminate health
disparities among different segments of the population.
7
Links to HHS Strategic Plan
OCR’s performance plan and PART are aligned with and support the HHS Strategic Plan (see
chart below).
OCR PERFORMANCE GOALS/OBJECTIVES
HHS
STRATEGIC GOAL
Goal 1: To ensure compliance and to increase awareness and understanding of Federal laws
requiring nondiscriminatory access to HHS programs and protection of the privacy of
individually identifiable health information.
Goal 2: To enhance
operational efficiency
Objective A:
To increase access to
and receipt of
nondiscriminatory
quality health and
human services while
protecting the integrity
of HHS Federal
financial assistance.
Objective:
To increase the number
of cases / reviews
resolved per FTE
assigned.
(See note at the top of
the following page.)
Objective B:
To protect the
privacy of
personally
identifiable
health
information for
healthcare
consumers.
Objective C:
To provide information
and training to
representatives of
health and human
service providers, other
interest groups, and
consumers.
Objective D:
To increase the number
of covered entities
which make substantive
policy change as a result
of intervention and / or
review.
Goal 1: Reduce the
major threats to the
health and well- being of
Americans.
X
X
X
X
Goal 2: Enhance the
ability of the Nation’s
health care system to
effectively respond to
bioterrorism and other
public health challenges.
X
X
X
X
Goal 3: Increase the
percentage of the
Nation's children and
adults who have access
to health care services,
and expand consumer
choices.
X
X
X
X
X
X
Goal 5: Improve the
quality of health care
services.
X
X
X
X
X
Goal 6: Improve the
economic and social
well-being of
individuals, families and
communities, especially
t hose most in need.
X
X
X
X
X
Goal 7: Improve the
stability and healthy
development of our
Nation's children and
youth.
X
X
X
X
X
Goal 8: Achieve
excellence in
management practices.
X
X
X
X
X
Goal 4: Enhance the
capacity and
productivity of the
Nation’s health science
research enterprise.
8
X
X
X
The PART Goal 2 objective focuses on improving operational efficiency and therefore increases
the proportion of resources being devoted to all issues. As such, the operational efficiency goal
supports the entire HHS Strategic Plan goals, noted above, because success under this goal will
result in increased resources focused on priority issues that address the HHS goals and other
initiatives such as: improved human capital management, improved financial management, and
integrating budget and performance information.
Links to Secretary Leavitt’s 500-Day Plan
OCR’s performance plan and PART submission are aligned with and support Secretary Leavitt’s
500-Day Plan (see chart below).
OCR’S PERFORMANCE GOALS/OBJECTIVES
SECRETARY’S
500 DAY PLAN
OBJECTIVES
Transform the
Healthcare
System.
Modernize
Medicare and
Medicaid.
Advance Medical
Research.
Secure the
Homeland.
Protect Life,
Family and
Human Dignity.
Improve the
Human Condition
Around the World.
Goal 1: To ensure compliance and to increase awareness and understanding of
Federal laws requiring nondiscriminatory access to HHS programs and protection of
the privacy of individually identifiable health information.
Goal 2: To enhance
operational efficiency
Objective A:
To increase access
to and receipt of
non-discriminatory
quality health and
human services
while protecting the
integrity of HHS
Federal financial
assistance.
Objective B:
To protect the
privacy of
personally
identifiable
health
information
for healthcare
consumers.
Objective:
To increase the
number of cases /
reviews resolved per
FTE assigned.
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
X
Objective C:
To provide
information and
training to
representatives of
health and human
service providers,
other interest
groups, and
consumers.
9
Objective D:
To increase the
number of
covered entities
which make
substantive
policy change as
a result of
intervention and
/ or review.
Overview of Performance
As a result of the PART process, OCR recast the agency’s performance measures to enhance its
focus on performance-oriented goals. This refinement of OCR’s performance measures will
allow OCR to more consistently measure the effectiveness of its program annually and over the
long-term. OCR’s internet-based Program Information Management System (PIMS), an
automated case management system, captures data in real-time related to complaint processing,
Medicare application reviews, outreach and technical assistance. Therefore, OCR can crosswalk
measures reported previously, to its current, consolidated PART framework.
In FY 2004, OCR consolidated its reporting into three objectives (Health Care, Social Services,
and Community-based Services/Disability). OCR now further refines these measures to capture
results on the entirety of its complaint mission areas in a more comprehensive manner. This
refinement reflects OCR’s commitment to implement the President’s Management Agenda, and
particularly the priority for increased budget and performance integration.
OCR has organized its PART submission around two overarching strategic goals that directly
support the HHS Strategic Plan and the Secretary’s 500-Day Plan:
Goal I
To ensure compliance and to increase awareness and understanding of Federal laws
requiring nondiscriminatory access to HHS programs and protection of the privacy
of individually identifiable health information.
Goal II
To enhance operational efficiency
While this section highlights some prior measures, baselines, and targets, for a complete list of
PART goals, measures, and targets see the Detail of Performance Analysis starting on page 53.
*
*
*
OCR’s first strategic goal is to ensure compliance and to increase awareness and understanding
of Federal laws requiring nondiscriminatory access to HHS programs and protection of the
privacy of individually identifiable health information. Under Goal I, there are four program
objectives that support the broad and inclusive program goal of increasing nondiscriminatory
access and participation in HHS programs and protecting the privacy of individually identifiable
health information:
Objective A
To increase access to and receipt of nondiscriminatory quality health and human
services while protecting the integrity of HHS Federal financial assistance
Objective B
To protect the privacy of personally identifiable health information for healthcare
consumers
Objective C
To provide information and training to representatives of health and human
service providers, other interest groups, and consumers
10
Objective D
To increase the number of covered entities that make substantive policy changes
or develop new policies as a result of intervention and / or review
OCR’s first strategic goal has a long-term consolidated output measure and target: to increase the
rate of resolution for civil rights and privacy cases and new Medicare application reviews to 100
percent of cases received per year by the end of FY 2012. That is, OCR will resolve as many
cases / reviews as received each year. The average age of all open cases will be less than one
year, excluding those requiring long-term monitoring and those in litigation or administrative
enforcement. The actual target is on a graduated scale, which means that the annual
improvement rate will decrease over time. The baseline in FY 2003 was 68.2 percent of cases
resolved. In FY 2004, OCR slightly exceeded the target for that year of 78 percent. In FY 2005,
OCR achieved a rate of 100.4 percent, significantly above the target for that year of 82 percent.
In FY 2005, OCR hired temporary employees to assist in the review of new Medicare
applications, freeing OCR’s Equal Opportunity Specialists to apply greater effort toward
reducing the backlog of civil rights complaints. The backlog of new Medicare applications is
now at a more manageable level.
OCR has two output measures that support this long-term goal and its related performance target.
The first measure is the percentage of civil rights cases and new Medicare application reviews
resolved to cases received. The baseline in FY 2003 was 85.1 percent of civil rights cases and
reviews resolved. In FY 2004, OCR achieved a rate of 89.1 percent, 3.6 percentage points above
the target of 85.5 percent for that year. In FY 2005, OCR achieved a rate of 125.7 percent, 35.8
percentage points above the target of 89.9 percent for that year. The second measure is the
percentage of privacy cases resolved to cases received. The baseline is 68.8 percent of privacy
cases resolved in FY 2004 because FY 2004 was the first full year since implementation of the
Privacy Rule. In FY 2005, OCR achieved a rate of 79.7 percent, 5.5 percentage points above the
target of 74.2 percent for that year.
Objective C has an annual output measure and target: to provide information and training to
31,250 individuals per year. The baseline in FY 2005 was 33,118.
OCR’s long-term outcome measure tied to Objective D is the number of covered entities that
make substantive policy changes or develop new policies as a result of OCR intervention. OCR’s
performance target for this measure is to increase this number by approximately 5.0 percent per
year over the FY 2005 baseline of 1,019.
*
*
*
OCR’s management goal, Goal II as submitted in PART, is to enhance operational efficiency.
The long-term measure is to increase the number of cases resolved per assigned FTE. The annual
effort towards achieving this measure is designed to meet the HHS Departmental goal of a 10
percent overall program improvement over three years. The target of OCR's management goal is
to enhance operational efficiency and is directly tied to OCR’s efficiency measure, to resolve 50
cases each year per FTE assigned by the end of FY 2012.
11
The table on “Links to HHS Strategic Plan” on page eight shows how the two goals and four
program objectives and one management objective contribute to outcomes in support of all eight
“One HHS” program goals focused on protecting and improving the health and well-being of the
American public.
Further, for accountability purposes, OCR is taking steps to link individual performance directly
to OCR’s established goals. OCR has incorporated organizational goals in all OCR leadership
plans at the GS-15 level and above, and in FY 2006 will cascade these organizational goals into
the performance plans for all staff.
The Detail of Performance Analysis on page 53 sets forth all the measures and targets for the
relevant past, present, and future fiscal years.
12
Overview of Budget Request
The Office for Civil Rights requests $36,283,000 in FY 2007. This is an increase of $1,637,000
over the FY 2006 Appropriation of $34,646,000. The requested funding will allow OCR to
maintain staffing at approximately 259 FTE, the same level of staffing as provided in the FY
2006 Appropriation, or 8 FTE under OCR’s FY 2005 authorized ceiling of 267 FTE. Other
increases in the FY 2007 request over the FY 2006 Appropriation level are for rental cost
increases and increases in shared costs; all other spending categories reflect no increases over the
FY 2006 Appropriation level. This budget maintains the same programmatic focus as provided
in the FY 2006 Appropriation.
Specifically, the FY 2007 requested amount of $36,283,000 would enable OCR to:
Continue to address key nondiscrimination issues, including the President’s New Freedom
Initiative, community-based services for persons with disabilities, racial and ethnic health
disparities, and Title VI and language access, while continuing to improve responsiveness to
the public’s questions about, and allegations of non-compliance with, the Privacy Rule.
Promote privacy protection in the implementation of initiatives to create integrated and
interoperable electronic networks for sharing health information, consistent with Secretary
Leavitt’s 500-day vision for transforming the U.S. health care system.
Meet annual targets stated in PART and remain on schedule to meet OCR’s long-range goal
of matching the rate of case resolutions to complaint receipts in the year 2012.
13
Program Assessment Rating Tool Summary
FY 2006 - 2007
(Dollars in Millions)
Program
Office for Civil
Rights (OCR)
FY 2006
Enacted
$34.65
FY 2007
Request
FY 2007 PART
$36.28
FY 2006
+/FY 2007
+$1.63
Narrative
Rating
Moderately
Effective
In FY 2005, OCR underwent the PART process and presented its performance results to OMB.
As reflected on the performance reporting web site, www.ExpectMore.gov, OCR earned a PART
rating of “Moderately Effective.” The PART process allowed OCR an opportunity to recast its
outcome goals and performance measures to more accurately reflect its results-oriented focus.
Although some of the newly revised outcome goals and performance measures presented in this
submission are refinements of those stated in previous submissions, OCR will continue to use the
revised PART-established framework to further refine its performance measures. Based on the
FY 2007 PART goals and measures, OCR exceeded its performance targets for FY 2005. Given
the 2005 performance, OCR will adjust its targets to ensure they are sufficiently challenging and
support continuous improvement. OCR’s PART findings concluded that OCR has a strong
purpose and design, is well-managed, and that independent evaluations indicate that OCR is
effective and achieving results. OCR will undertake stronger efforts to demonstrate the use of
performance information in day-to-day decision-making, including partnership agreements.
OCR is taking the following actions to improve performance:
Revising performance goals to ensure they are sufficiently ambitious.
Considering projected performance when making funding decisions.
Ensuring partnership agreements with other offices of Health and Human Services and
other Federal agencies include attainment of long-term and annual measures.
In order to meet the goals set forth in OCR’s PART submission, OCR is requesting $36,283,000
for FY 2007.
14
DEPARTMENT OF HEALTH AND HUMAN SERVICES
OFFICE FOR CIVIL RIGHTS
For expenses necessary for the Office for Civil Rights, [$31,682,000] $32,969,000 together with
not to exceed $3,314,000 to be transferred and expended as authorized by section
201(g)(1) of the Social Security Act from the Hospital Insurance Trust Fund and the
Supplemental Medical Insurance Trust Fund. (Department of Health and Human Services
Appropriations Act, 2006).
15
OFFICE FOR CIVIL RIGHTS
AMOUNTS AVAILABLE FOR OBLIGATION
2005 Actual
2006
Appropriation
1
2007 Estimate
Appropriation:
Annual ...............................................
$32,043,000
$31,682,000
$32,969,000
Enacted rescission .............................
-61,000
---
---
Enacted rescission .............................
-256,000
---
---
Enacted rescission .............................
---
-317,000
---
Subtotal, adjusted appropriation .......
31,726,000
31,365,000
32,969,000
Subtotal, adjusted budget authority..
31,726,000
31,365,000
32,969,000
Annual appropriation ........................
3,314,000
3,314,000
3,314,000
Enacted rescission .............................
-26,000
---
---
Enacted rescission .............................
---
-33,000
---
Subtotal, adjusted trust funds ............
3,288,000
3,281,000
3,314,000
35,014,000
34,646,000
36,283,000
Unobligated balance lapsing .............
- 61,000
---
---
Total obligations..............................
$34,952,000
$34,646,000
$36,283,000
Trust funds:
Total Budget Authority
1
Excludes the following amounts for reimbursable activities carried out by this account:
FY 2006 $400,000, FY 2007 $575,000.
16
OFFICE FOR CIVIL RIGHTS
SUMMARY OF CHANGES
2006 Appropriation…………………………………………………………….
Trust funds transfer………………………………………………………
Total estimated budget authority…………………………………………
$31,365,000
3,281,000
$34,646,000
2007 Estimate – General funds…………………………………………………
Trust funds transfer……………………………………………………….
Total estimated budget authority…………………………………………
$32,969,000
3,314,000
$36,283,000
Net Change……………………………………………………………….
+$1,637,000
2006 Current
Budget Base
Change from Base
(FTE)
Budget
Authority
(FTE)
Budget
Authority
1. Annualization of January 2006 pay raise
(259)
$25,607,000
(259)
+$200,000
2. Effect of January 2007 pay raise………..
(259)
$25,607,000
(259)
+$425,000
3. Within-grade increases, promotions, and
other personnel compensation ………….
(259)
$25,607,000
(259)
+$491,000
4. Increase in rental payments to GSA, and
Service and Supply Fund, Unified
Financial Management System, IT Service
Center and other built-in cost
increases…………………………………
(259)
$9,039,000
(259)
+521,000
Total increases………………………………
(259)
$34,646,000
(259) +$1,637,000
(259)
$34,646,000
(259) +$1,637,000
Increases:
A. Built-in:
B. Program: None
Decreases: None
Net Change……………………………………….
17
OFFICE FOR CIVIL RIGHTS
BUDGET AUTHORITY BY ACTIVITY 1
(Dollars in Thousands)
2005
Actual
2007
Estimate
FTE
Amount
FTE
Amount
FTE
Amount
214
$30,339
224
$29,964
224
$31,380
Legal Services.............
18
2,550
19
2,542
19
2,662
Program Management..
15
2,125
16
2,140
16
2,241
247
$35,014
259
$34,646
259
$36,283
Compliance Activities..
Total Budget Authority
General funds.................
1
2006
Final Appropriation
$31,726
$31,365
$32,969
HI/SMI trust funds...........
3,288
3,281
3,314
Total Budget Authority
$35,014
$34,646
$36,283
Excludes the following projected amounts for reimbursable activities carried out by this account:
FY 2006 $400,000 and two FTE; FY 2007 $575,000 and two FTE.
18
OFFICE FOR CIVIL RIGHTS
BUDGET AUTHORITY BY OBJECT
2006
Appropriation
2007
Estimate
Increase or
Decrease
259
$138,873
11.8
$78,313
259
$141,165
11.9
$80,691
-+$2,292
--+$2,378
$19,666,000
$20,559,000
+$893,000
Other than full-time permanent....................................
840,000
574,000
-266,000
Other personnel compensation....................................
200,000
300,000
+100,000
Military personnel………………………….…………
71,000
73,000
+2,000
Total, Personnel Compensation...................................
20,777,000
21,506,000
+729,000
Civilian personnel benefits..........................................
4,791,000
5,178,000
+387,000
Military personnel benefits…………………………..
18,000
18,000
---
Benefits to Former Personnel.......................................
21,000
21,000
Subtotal, Pay Costs.......................................................
25,607,000
26,723,000
+1,116,000
Travel...........................................................................
300,000
300,000
---
Transportation of Things.............................................
17,000
17,000
---
Rental payments to GSA.............................................
3,600,000
3,676,000
+76,000
Rental payments to others...........................................
27,000
27,000
---
Communications, utilities, and others.........................
403,000
403,000
---
Printing and Reproduction...........................................
45,000
45,000
---
Services from the Private Sector..................................
687,000
687,000
---
Purchases of goods and services from other
government accounts...................................................
(Service and Supply Fund payment)...........................
2,339,000
(1,694,000)
2,784,000
(1,730,000)
+445,000
(+36,000)
Operation and Maintenance of Facilities.......................
150,000
150,000
---
Operation and Maintenance of Equipment....................
1,148,000
1,148,000
---
Subtotal Other Contractual Services.............................
4,324,000
4,769,000
+445,000
Supplies and Materials................................................
274,000
274,000
---
Equipment...................................................................
49,000
49,000
---
Subtotal, Non-Pay Costs...............................................
9,039,000
9,560,000
+521,000
Total Budget Authority by object class.........................
$34,646,000
$36,283,000
+1,637,000
Full-time equivalent employment................................
Average SES salary.....................................................
Average GS grade.......................................................
Average GS salary.......................................................
Personnel compensation:
Full-time permanent....................................................
19
OFFICE FOR CIVIL RIGHTS
SALARY AND EXPENSES
2006
Appropriation
2007
Estimate
Increase or
Decrease
Full-time permanent (11.1)...........................................
$19,666,000
$20,559,000
+$893,000
Other than full-time permanent (11.3)..........................
840,000
574,000
-266,000
Other personnel compensation (11.5)...........................
200,000
300,000
+100,000
Military personnel (11.7)..………………….…………
71,000
73,000
+2,000
Total, Personnel Compensation...................................
20,777,000
21,506,000
+729,000
Civilian personnel benefits (12.1).................................
4,791,000
5,178,000
+387,000
Military personnel benefits (12.2)..…………………..
18,000
18,000
---
Benefits to Former Personnel (13.0)..............................
21,000
21,000
Subtotal, Pay Costs.......................................................
25,607,000
26,723,000
+1,116,000
Travel (21.0)..................................................................
300,000
300,000
---
Transportation of things (22.0)......................................
17,000
17,000
---
Rental payments to others (23.2)...................................
27,000
27,000
---
Communications, utilities, and others (23.3).................
403,000
403,000
---
Printing and Reproduction (24.0)...................................
45,000
45,000
---
Services from the Private Sector (25.2)..........................
687,000
687,000
---
Purchases of goods and services from other
government accounts (25.3)............................................
(Service and Supply Fund payment).............................
2,339,000
(1,694,000)
2,784,000
(1,730,000)
+445,000
(+36,000)
Operation and Maintenance of Facilities (25.4)..............
150,000
150,000
---
Operation and Maintenance of Equipment.(25.7)...........
1,148,000
1,148,000
---
Subtotal Other Contractual Services…............................
4,324,000
4,769,000
+445,000
Supplies and Materials (26.0)...........................................
274,000
274,000
---
Subtotal, Non-Pay Costs..................................................
5,390,000
5,835,000
+445,000
Total Salary and Expenses……………….......................
$30,997,000
$32,558,000
+1,561,000
Direct FTE……………………………….......................
259
259
---
Object Class
Personnel compensation:
20
OFFICE FOR CIVIL RIGHTS
AUTHORIZING LEGISLATION
2006
Amount
Authorized
2006
Appropriation
2007
Amount
Authorized
2007
Budget
Request
Office for Civil Rights:
P.L. 88-352;
42 U.S.C. 300s;
P.L. 91-616;
P.L. 92-157;
P.L. 92-158;
P.L. 92-255;
P.L. 93-282;
P.L. 93-348;
P.L. 94-484;
P.L. 95-567;
P.L. 97-35;
P.L. 103-382;
P.L. 104-188;
P.L. 92-318;
P.L. 93-112;
P.L. 94-135;
P.L. 101-336;
P.L. 104-191
Indefinite
$34,646,000
21
Indefinite
$36,283,000
OFFICE FOR CIVIL RIGHTS
APPROPRIATIONS HISTORY TABLE
Budget
Estimate
to Congress
House
Allowance
Senate
Allowance
Appropriation
1998
Appropriation
Trust Funds
17,216,000
3,314,000
16,345,000
3,314,000
16,345,000
3,314,000
16,345,000
3,314,000
1999
Appropriation
Rescission
1% Transfer
Trust Funds
17,345,000
----3,314,000
17,345,000
----3,314,000
17,345,000
----3,314,000
17,345,000
-34,000
-7,000
3,314,000
2000
Appropriation
Rescission
1% Transfer
Trust Funds
18,845,000
----3,314,000
18,338,000
----3,314,000
18,845,000
----3,314,000
18,838,000
-64,000
445,000
3,314,000
2001
Appropriation
Rescission
1% Transfer
Trust Funds
24,142,000
----3,314,000
18,774,000
----3,314,000
23,242,000
----3,314,000
24,742,000
-51,000
--3,314,000
2002
Appropriation
Rescission
Rescission
Rescission
Transfer to GDM
Trust Funds
28,691,000
--------3,314,000
28,691,000
----—
--3,314,000
28,691,000
----—
--3,314,000
28,691,000
-50,000
-23,000
-126,000
-376,000
3,314,000
30,328,000
-385,000
30,328,000
-385,000
--3,314,000
30,328,000
-385,000
-219,000
3,314,000
2003
Appropriation
Transfer to GDM
Rescission
Trust Funds
3,314,000
—
—
—
3,314,000
2004
Appropriation
Rescission
Rescission
Trust Funds
Rescission
Rescission
30,936,000
----3,314,000
—
---
30,936,000
----3,314,000
—
---
30,936,000
----3,314,000
—
---
30,936,000
-133,000
-182,000
3,314,000
-14,000
-19,000
2005
Appropriation
Rescission
Rescission
Trust Funds
Rescission
32,042,000
----3,314,000
---
32,042,000
—
—
3,314,000
---
32,042,000
—
—
3,314,000
---
32,043,000
-61,000
-255,000
3,314,000
-27,000
2006
Appropriation
Rescission
Trust Funds
Rescission
31,682,000
--3,314,000
---
31,682,000
--3,314,000
---
31,682,000
--3,314,000
---
31,682,000
-317,000
3,314,000
-33,000
2007
Appropriation
Trust Funds
32,969,000
3,314,000
22
DEPARTMENT OF HEALTH AND HUMAN SERVICES
OFFICE FOR CIVIL RIGHTS
Budget Authority
2005
Actual
2006
Appropriation
2007
Request
Increase or
Decrease
$35,014,000
$34,646,000
$36,283,000
$1,637,000
247
259
259
---
FTE
Note: FTE level does not include two reimbursable FTE in FY 2006 and FY 2007.
Statement of Budget Request
The President’s appropriation request of $36,283,000 for this account represents current law
requirements. No proposed law amounts are included. OCR conducts public education;
outreach; complaint investigation and resolution; and other compliance activities to prevent and
eliminate discriminatory barriers, to ensure the privacy of individually identifiable health
information, and to enhance access to quality HHS-funded programs.
Program Description
As the primary defender of the public's right to nondiscriminatory access to and receipt of
federally funded health and human services, OCR works to ensure equal opportunity for all to
access the wide range of services available and that the privacy of their health information is
protected while ensuring access to care. Through prevention and elimination of unlawful
discrimination and by protecting the privacy of individually identifiable health information, OCR
helps HHS carry out its overall mission of improving the health and well-being of all people
affected by the Department’s many programs. OCR assesses compliance with nondiscrimination
and Privacy Rule requirements by processing and resolving complaints. In addition, OCR also
conducts pre-grant and preventative compliance reviews; monitoring of corrective action plans;
and public education, outreach, voluntary compliance, training, technical assistance, and
consultation activities as additional means of achieving compliance with nondiscrimination and
Privacy Rule requirements.
OCR is comprised of compliance, policy, legal counsel, and program management staff. The
majority of OCR's staff works on frontline civil rights nondiscrimination and Privacy Rule
compliance activities, largely in OCR's regional offices. In support, a cadre of headquarters
analysts provides program and policy coordination and initiatives to enhance program
effectiveness and efficiency.
OCR allocates staff time to mandated complaint investigations, Medicare pre-grant reviews, and
OCR-initiated compliance activities (e.g., compliance reviews, public education, outreach,
voluntary compliance, and technical assistance). Staff time spent on OCR-initiated compliance
activities focuses on particularly compelling, high profile, or systemic issues that benefit the
greatest number of people possible. The issues surfaced in complaints and pre-grants also
address public civil rights and privacy concerns.
23
Investigations of compliance, public education, outreach, voluntary compliance, technical
assistance, training, consultation, and collaborative project activities are each equally significant
methods by which OCR achieves corrective action and prevention of unlawful discrimination
and Privacy Rule non-compliance. OCR uses these methods interchangeably and with flexibility
to address the unique compliance circumstances facing individual HHS grantees, service
providers, and other covered entities, with an emphasis on prevention and voluntary compliance.
In some cases, public education and outreach may better serve the purpose of achieving
compliance than a review or audit activity. In other instances, an investigation or review may be
deemed the best means for achieving a positive compliance outcome. Each of the activities that
are identified as results or indicators in this report are planned, substantive, and part of an overall
compliance strategy that requires significant staff time and resources.
24
Performance Analysis
For each objective in the FY 2007 performance plan, OCR set targets for each of the measures in
relation to this FY 2007 President’s Budget request. If OCR receives funding below this level, it
will adjust its targets accordingly.
Performance Goal
Increase the rate of
resolution for civil rights and
privacy cases and new
Medicare application
reviews received each year
to 100% per year by the end
of FY 2012.
Increase the number of
individuals who are, or
represent, health and human
service providers, other
interest groups, and
consumers to whom OCR
provides information and
training.
Increase the number of
covered entities that make a
substantive policy change or
develop new policies as a
result of OCR intervention
and/or review.
Results
OCR has met or exceeded its
annual target since establishing
the baseline in FY 2003 and is
on schedule to achieve this goal
in the timeframe specified.
Context
As the Department’s law
enforcement agency
responsible for resolving
complaints of non-compliance,
OCR’s performance measures
are the rate of civil rights and
privacy complaint cases
resolved and new Medicare
application reviews completed
each year to cases / reviews
received. Output measures are
appropriate for OCR since its
functions are primarily
investigating and resolving
complaints and ensuring
compliance with privacy and
civil rights laws.
OCR has established 31,250 as
From FY 2005 through
its annual target for this measure FY 2012, OCR will provide
and is on schedule to achieve
information and training to
the goal in this and subsequent
31,250 individuals annually,
fiscal years.
who are, or represent, health
and human services providers,
other interest groups, and
consumers.
OCR established the baseline in By increasing the number of
FY 2005 (1,019 covered
covered entities that make
entities) and developed
substantive policy changes or
ambitious future targets
develop new policies as a
according to the framework
result of OCR intervention,
developed in OCR’s PART.
OCR has a measurable
outcome to assess its impact
on the population it serves.
Rationale for Budget Request
Since implementation of the Privacy Rule in 2003, which more than tripled the number of
complaints filed with OCR, case resolution has not been able to keep pace with the receipt of
new health information privacy and civil rights’ complaint receipts. Although the backlog of
unresolved complaints will continue to grow in the short term, OCR’s ambitious achievement of
its PART goals will enable it to reduce the growing backlog in future years with a goal of finally
eliminating it.
25
The following tables illustrate OCR’s projected receipt and complaint resolution workload for
Privacy Rule and civil rights discrimination complaints, along with preventative compliance
review workload (primarily new Medicare application reviews) from FY 2005 through FY 2007.
Complaint Workload – Privacy Rule
FY 2005
FY 2006
Actual
Projected
Beginning Inventory
3,482
4,853
Complaints Received
6,756
6,750
Total Workload
10,238
11,603
Complaints Resolved
5,385
5,640
Ending Inventory
4,853
5,963
FY 2007
Projected
5,963
6,750
12,713
5,810
6,903
Complaint Workload – Civil Rights
FY 2005
FY 2006
Actual
Projected
Beginning Inventory
1,655
1,663
Complaints Received
3,046
3,100
Total Workload
4,701
4,763
Complaints Resolved
3,038
2,725
Ending Inventory
1,663
2,038
FY 2007
Projected
2,038
3,150
5,188
2,815
2,373
Workload – New Medicare Application Reviews (Pre-Grants)
Beginning Inventory
New Reviews
Total Workload
Reviews Resolved
Ending Inventory
FY 2005
Actual
2,429
2,466
4,895
3,890
1,005
FY 2006
Projected
1,005
2,550
3,555
2,810
745
FY 2007
Projected
745
2,600
3,345
2,890
455
As OCR reported in its FY 2006 Congressional Justification, Privacy Rule complaints since
implementation of the Rule in April 2003 have far exceeded original expectations. Complaints
received in FY 2004 and FY 2005, the first two full years since implementation of the Privacy
Rule, together totaled 13,173, or 25 percent more than forecasted at the time the Rule was
implemented. In its FY 2006 Congressional Justification, OCR projected a gradual leveling off
of Privacy Rule complaints in FY 2005 and FY 2006 to 6,602 and 6,735 per year respectively.
An analysis of OCR’s Privacy Rule complaint receipt data over the past twelve months confirms
a leveling off of complaint volume to approximately 6,750 per year in the FY 2005 – FY 2007
period.
26
OCR has also experienced a greater than anticipated increase in receipts of civil rights
complaints since FY 2004. In its FY 2006 Congressional Justification, OCR noted that the
number of civil rights complaints received in FY 2004 and FY 2005 was 21 percent and 19
percent higher per year respectively than was projected in the FY 2005 Congressional
Justification. Nonetheless, OCR’s increased projections of civil rights complaints in the
FY 2006 Congressional Justification have proven conservative for FY 2005, as current data show
that complaint volume for FY 2005 was almost 3 percent greater than had been forecasted. This
contrasts with the data for FY 2006, however, where the volume for civil rights complaint
receipts is now projected to be 4 percent less than anticipated in the FY 2006 Congressional
Justification. OCR’s analysis of the last twelve months’ data suggests that while the volume of
civil rights complaints will continue to increase at a higher rate than Privacy Rule complaints, the
rate of increase is slowing considerably. OCR projects a 1.6 percent increase from FY 2006 to
FY 2007 in civil rights complaint receipts.
As a result of the increased complaint receipt volume for both Privacy Rule and civil rights
complaints over the past two years, case resolution has not kept pace with the increased volume
of complaint receipts. In the ten year period from 1994-2003, prior to implementation of the
Privacy Rule, OCR resolved on average just under 70 percent of each year’s complaint workload
(cases carried into the year plus allegations newly received in each year). In FY 2005, OCR’s
resolution rate against total workload was 62 percent, and current projections indicate the rate
may fall below 60 percent in both FY 2006 and FY 2007.
Because complaint resolution has not kept pace with increases in complaint receipts, the
percentage of OCR’s workload that is composed of older unresolved complaints has continued to
increase. In FY 2005, 38 percent of the year’s total workload was composed of backlogged
complaints compared to 30 percent in FY 2004. Based on current projections, this rate will
exceed 40 percent in FY 2006 and FY 2007. By the end of FY 2007 OCR anticipates a backlog
of over 9,000 combined Privacy and civil rights complaints and new preventative compliance
Medicare application reviews (pre-grants).
In addressing this challenge, OCR anticipates achieving greater efficiencies in case resolution
due to its FY 2004 reorganization and improved case management techniques. In FY 2007 OCR
will identify competency gaps in critical positions to enhance staff performance and serve as a
tool for management to remedy gaps in skill sets and to more efficiently deploy appropriate staff
resources. OCR will continue to focus on other ways to enhance efficiencies, for example, in the
summer of FY 2005, OCR hired temporary employees to assist in the resolution of preventative
compliance reviews, freeing OCR’s Equal Opportunity Specialists to apply greater effort toward
reducing the backlog of civil rights complaint receipts. This resulted in a reduction in the
backlog of 400 civil rights complaints. To do so, OCR applied FTEs and associated funding for
positions not yet filled after staff departures due to a buy-out opportunity associated with a
reorganization in late FY 2004 and early FY 2005. This effort allowed OCR to achieve the 56.4
percent resolution rate for FY 2005 cited above.
Through these efforts, and in the context of the anticipated leveling off in the volume of new
complaints as described above, OCR has established an output measure and target for FY 2007,
as reported in this budget submission and in OCR’s FY 2007 PART submission, to achieve a
27
receipt to resolution ratio for aggregated complaints and new Medicare application reviews of 92
percent, with a long-term goal, factoring in a 3.3 percent productivity rate increase each year, to
achieve a 100 percent equilibrium between receipts and resolutions / reviews by the end of 2012.
The requested funding level will sustain OCR’s efforts to achieve this equilibrium by the target
date. Achieving this long-term performance goal is critical to OCR’s efforts to apply resources
to reduce and finally eliminate the currently growing backlog of complaints and preventative
compliance reviews.
The following section highlights some of OCR’s successes resulting from the wide range of
activities in which OCR is involved in its efforts to ensure compliance with federal laws
requiring nondiscrimination and the protection of individually identifiable health information.
OVERVIEW OF OCR ACTIVITIES
OCR will implement its civil rights and privacy of health information compliance activities
through a comprehensive compliance and public education and outreach program. The program
includes:
Complaint Processing
Preventative Compliance Reviews, Medicare Pre-Grant Reviews, and Monitoring
Public Education, Outreach, and Voluntary Compliance
In addition, OCR will ensure the integrity and efficiency of its compliance activities by
conducting:
Policy-making and Coordination
Legal Advisory Support for Policy
Program Management and Operations Support
COMPLIANCE ACTIVITIES
COMPLAINT PROCESSING
OCR is responsible for investigating complaints of civil rights discrimination or noncompliance
with privacy regulations within its jurisdiction that are filed with the office. This responsibility
is based on the Department's regulations implementing the various nondiscrimination statutes
and the Department of Justice (DOJ) coordinating regulations requiring compliance agencies,
such as OCR, to establish procedures for the prompt processing and disposition of complaints
alleging discrimination. It also derives from numerous other statutory and regulatory authorities
including the Americans with Disabilities Act (ADA) regulations and the Privacy Rule pursuant
to HIPAA.
28
I. Civil Rights
A. Disabilities
1. The Americans with Disabilities Act (ADA), Olmstead, and the New Freedom Initiative
OCR is involved in a variety of efforts to increase the independence and quality of life of persons
with disabilities, including those with long-term needs. Most notably, OCR has played a critical
role in the Administration's New Freedom Initiative that was announced in February 2001, and
implemented through an Executive Order issued on June 19, 2001 (E.O.13217). The Executive
Order commits the United States to a policy of community integration for individuals with
disabilities and calls upon the Federal Government to work with states to implement the ADA
regulation requiring that qualified individuals with disabilities be provided with services “in the
most integrated setting appropriate to their needs,” as interpreted by the U.S. Supreme Court in
Olmstead v. L.C. The Executive Order calls for swift implementation of the Olmstead decision
and full enforcement of Title II of the ADA through investigations, complaint resolution, and the
use of alternative dispute resolution.
As part of the Executive Order, the President directed the Secretary of HHS to coordinate the
activities of other Federal agencies. At the Secretary's direction, OCR coordinated the efforts of
nine Federal agencies in a rigorous self-evaluation, with public input, of their policies, programs,
statutes, and regulations to determine whether any should be revised or modified to improve the
availability of community-based services for qualified individuals with disabilities. This
coordinated effort led to the production of Delivering on the Promise, a comprehensive
compilation of the reports of nine Federal agencies outlining more than 400 specific steps the
agencies will implement to support community living for the nearly 54 million Americans living
with disabilities. OCR, on behalf of the Department, has sole responsibility for fulfilling certain
specific commitments in Delivering on the Promise.
Since 1999, when the Olmstead decision was issued, OCR has received approximately 700
complaints and resolved approximately 500 complaints filed by individuals and organizations
alleging individual and systemic violations of the Title II integration regulation of the ADA.
OCR has successfully resolved a number of these complaints by working extensively with states
to assist them in complying with the requirements of the ADA. The work of OCR has helped
move individuals from institutional to community settings and has helped others avoid
institutionalization. During FY 2007, OCR's investigation and resolution of Olmstead-related
complaints as well as its public education and direct technical assistance to the states will
continue to underscore the Administration's commitment and the Department's Federal
Government leadership and coordinating role of improving access to community-based services
for people with disabilities.
The following are specific examples of OCR Olmstead complaint investigation outcomes and
their impact.
29
Delaware Department of Health and Social Services and Delaware Psychiatric Center - An
advocacy group filed a complaint, alleging that psychiatric hospital residents who sought
discharge and whose treating professionals had determined that they could appropriately be
served in the community were being inappropriately institutionalized. Through nearly four
years of OCR intervention and assistance, the State took actions to address the individual
and systemic issues involved in this complaint. As an outgrowth of OCR’s investigation,
the State identified individuals ready for discharge from the institution, and worked with
OCR to place more than 50 of these individuals into the community.
Montana Department of Public Health and Human Services - OCR worked with the State,
the complainant, and advocates to resolve a complaint filed on behalf of an individual with
several mental and physical disabilities. The complainant alleged that she was not placed in
the most integrated setting appropriate for her needs when she was moved from the
community to an institutional setting. OCR initially met with State officials to assist with
the development of the State’s Olmstead Plan and provided Olmstead related training to the
State legislature. Once the complainant was certified as eligible for treatment in the
community, OCR worked with the State and advocates to identify potential placement
options for the complainant and explore the possibility of adapting the State’s community
services program to meet the needs of the complainant. The complaint was ultimately
resolved through the complainant’s placement in the community where she receives support
services.
Kansas Department of Social and Rehabilitation Services (KS-SRS) - During FY 2005,
OCR’s Region VII office received twenty-three Olmstead complaints against KS-SRS.
OCR provided significant technical assistance to the agency and secured relief to all
complainants, who received the home and community based waiver services they had
requested.
Oregon Department of Human Services - OCR’s Region X staff worked with a
complainant’s advocate and representatives of the Oregon Department of Human Services,
county, and contractor entities to facilitate creation of an innovative duplex-based housing
and services plan. Prior to OCR's involvement, the complainant was at risk of
institutionalization due to inadequate supported housing resources in the existing mental
health services delivery system. The stable, supported housing/services arrangement
created to resolve the complaint removes the possibility of eviction/homelessness and
resulting institutionalization. The complainant’s advocate reports that the complainant is
now making remarkable developmental progress due to her stable situation. Based on this
experience, Oregon officials have asked OCR to participate in future Olmstead work group
sessions to foster inter-agency communications and cooperation.
State of Tennessee - OCR worked with the State to resolve a complaint filed by a woman
with cerebral palsy, who had resided in a nursing home for three years. She was approved
for 12 hours/day of personal support services and moved to an apartment in the community.
30
2. Other OCR Activities to Ensure Non-Discriminatory Treatment of Individuals with
Disabilities: HIV/AIDS, Accessibility, and Effective Communication
In addition to enforcing Title II of the ADA, OCR enforces Section 504 of the Rehabilitation Act
of 1973, which prohibits recipients of Federal financial assistance from discriminating against
qualified individuals on the basis of disability. HHS recipients subject to Section 504 include
many hospitals, nursing homes, mental health centers, medical providers, and human services
programs.
OCR is continuing its long history of using Section 504, along with other non-discrimination
authorities, to respond to the HIV/AIDS epidemic and the continuing stigma and discrimination
faced by some persons living with HIV and AIDS. For example, OCR works to ensure that
providers who participate in the Medicaid program do not unlawfully refuse to treat persons with
HIV infection who are protected by Section 504 and/or Title II of the ADA. Minorities bear a
disproportionate share of the burden of these new HIV infections each year, bringing to bear
OCR’s commitment to reducing health disparities in addition to our focus on disability rights and
our efforts to protect the privacy of health information so important to persons with HIV. In
2005, OCR mounted a national OCR HIV/AIDS in-service Training and Conference for our
staff. OCR and CDC trainers provided updates on legal authorities and new tools for
investigative and outreach activity. In FY 2006 and 2007, OCR will use new tools for
HIV/AIDS work developed in 2005 in conjunction with this training such as an analytic
investigatory guide, a review of pertinent case law, a PowerPoint outreach presentation for lay
audiences, a revised fact sheet on HIV/AIDS discrimination, and resource and referral
information posted on OCR’s website.
OCR’s investigative activities in this area have resulted in health care providers modifying their
practices and policies to afford equal access to individuals with HIV infection. Other 504 cases
have resulted in facilities establishing telecommunications services for the deaf, and making
facilities more accessible. The following are a sample of OCR complaints concerning Section
504 of the Rehabilitation Act:
Oakwood Annapolis Hospital in Wayne, MI - The complainant alleged that Oakwood
Annapolis Hospital discriminated against him on the basis of his disability as an HIV+
individual. Specifically, the complainant was told by the Hospital when he arrived for a
scheduled surgery that his surgery could not be performed at the time scheduled because the
staff was not previously aware that he had AIDS and was now required to conduct certain
sterilization preparations. OCR’s investigation revealed that the Hospital’s protocol to apply
standard precautions consistently in the care of all patients in all patient care settings had
not been properly followed. The Hospital voluntarily took corrective actions to avoid future
incidents of this type by counseling staff members to consistently use a high level
disinfectant that satisfies Universal Precautions protocol. The Hospital also purchased
additional equipment to prevent delays associated with cleaning and disinfecting equipment.
Sinai-Grace Hospital (SGH) in Detroit, MI – As a result of a complaint that alleged that
SGH discriminated on the basis of disability (deafness) by failing to provide a qualified sign
language interpreter as an auxiliary aid and thereby denying equal opportunity to benefit
31
from high quality health care, a systemic change was made. SGH is owned by the Detroit
Medical Center (DMC), which also operates six other hospitals. As result of OCR’s
technical assistance efforts, DMC revised, augmented, and refined its admissions and
assessment policies and procedures to achieve effective communication with all patients
and their families, including: assessment and accommodation of the needs and preferred
method of communication for the patient, family member, or concerned individual who is
deaf or hard of hearing and provision of qualified sign language interpreters free of charge,
with a very short turn-around time, even during the middle of the night or on weekends.
The DMC also ensured that brochures were made available and signs that inc