Electronically Sign Dog Shot Record Made Easy

Electronically sign dog shot record

what happens when even walking outside causes extreme pain well for the brave girl you're about to meet simple pleasures like splashing in a pool or running in a playground led to a baffling set of symptoms until one doctor discovered the unlikely source of her suffering here's ABC's Abbie Boudreau it's every parent's worst nightmare a happy child who normally looks like this reduced to this someday she would just cry for hours and hours on him and it just felt like lava was being poured on me like it burns from the inside out a medical mystery he's also hopeless there's nothing you can do Savannah Fulkerson was four years old living in sunny California when her mom Andrea first noticed something strange we'd be outside and she'd start screaming would be at the pool and she'd scream she's burning and she wants to go in and I'd be like we just got here what is the problem actually I heard a bird a bird I want to go in I can't take it and I was like really itched a lot and it like would turn my hands my feet really red like if I scratch too much it would like blister kind of and then scar Andrea would put Savannah's hands and bags of ice or cold bathtub nothing would help I've taken her to the doctor when she's been crying and going we're here what's wrong with her what's wrong with her they just tell me she has eczema I'm telling them it's got to be more than eczema you don't cry like that from eczema for five years the Fulkerson's had no answers until they met dr. Minelli Lou at Children's Hospital Los Angeles in Savannah's case and we can see that she has developed these red welts on her hand as well as her fingers and this along with her young age made dr. Lou suspect Savannah had a rifra poetic or FIRREA also called epp a rare and sometimes deadly disease it was even featured on the television show house but could this be what was affecting little Savannah the challenge is both how rare the condition is as well as the subtlety sometimes there may be some red patches maybe some areas that look sunburned and that can lead to a long lag in diagnosis after years of no answers a simple blood test finally gave them one what did the doctors finally tell you that um she had they don't say here throw periodic porphyria it would mean a lifetime sentence confined to a world in the shadows how do you explain this to your friends I just usually say that I'm allergic to the Sun I can't be out like I can never go to the beach I can never go to a sunlit pool like I have um literally I have to be in the dark darks my home Savannah now 11 years old has to wait until evening to swim in her pool my friends definition of a normal day in my definition of a normal day are way different hers is bright sunny and beautiful mine's dark cloudy and rainy and when she does venture out into daylight it's an effort putting on this UV protective clothing people have made fun of you because of this yeah because of like my scarred hands they called me like old lady hands or umbrella head because my big hat that goes around so I don't get burned they don't understand they don't but Savannah doesn't let that get her down but look at your you have such a good attitude about it how is that possible I just try to think positive because I know kids somewhere else have way worse than me the family has made adjustments for the little girl with boundless energy you have a trampoline in your living room who has that not many people not many people savannas not the only kid living life in the shade when the sun goes down a fun summer day is just beginning for these one-of-a-kind campers in New York City fantastic we enjoying this we having fun you guys these kids suffer from another rare genetic skin disorder called XP any exposure to sunlight can cause third-degree burns and can lead to cancer when their daughter Katie was diagnosed with XP Dan and Karen Mayer founded camps sundown in upstate New York where day is night and night is day these rare medical conditions aren't new some scientific historians speculate Vlad the third of Transylvania had EPP he's believed to be the historical basis for Dracula giving rise to vampire and werewolf legends that continued to this day in popular TV shows like Vampire Diaries [Music] but just today new hope for savanah and others like her a study about a drug treatment called a family note I'd published in the New England Journal of Medicine with this drug you're going to increase the melanin your skin you're going to tan in a couple days and the tan and the melanin will act as a safety filter for the harmful rays of the Sun although the study's findings are promising the drug is only available in Europe awaiting FDA approval here in the states at the moment this is the only drug that's really effective as shown by the clinical studies what is your big hope there's a care out there and like kids don't have to live with this experts say less severe forms of EPP can occur some symptoms are redness over areas exposed to the Sun such as the nose the cheeks or hands there of course many other skin conditions I can present with exactly the same findings and so that's where seeking attention with either a dermatologist who specializes in children or a porphyria specialist is very very important I just wish I didn't have it I wish no one had it but for Savannah and her family the hope that maybe one day she'll be able to feel the Sun on her skin without pain is enough to keep her smile it doesn't define me like when I get older like it's not gonna change what I want to do am I like I'm still gonna want to have like everything that I possibly can as like a normal life what would that normal life look like to you a house on the beach on the beach a sunny beach yeah really it's not gonna tear me down that's gonna just build me up for nightline I'm Mattie Boudreau in Santa Clarita California